Back to my normal Monday meetings with Prof- I decided I didn't want to wait any longer after my operation.
We discussed how I was managing at home etc and if I was on top of the pain. The pain specialist decided she would come in too! Anyway, the aggressive cancer is the one I can feel very close to the original stoma (called Bob, after Bob from Monsters vs Aliens!)
The other tumours are stable (or were before the operation)
Basically without treatment as I am now I have approx 4-6 months left. I decided to continue treatment scheduled for this Wednesday. I feel I need to give it one last go. I don't want to be in a position I am full of regret and there being no way back. Obviously prognosis is unknown as it depends how my body reacts to the treatment.
P.S the other new stoma is called Wayne. If anyone was wondering!
28th May
Well after my release from prison...or I mean discharged from hospital, I've been recuperating and having nurse visits every other day-to stick me back together!
Not sure if I've got the water infection back!...great!
My GP rang today as they had their weekly MDT meetings-and he just wanted to check I was ok and if there was anything he could do, them let him know. He praised me on how 'chipper' my voice was over the phone, and also praised me on my outlook. I know how all this will end but trying to be as positive and upbeat as I can. Not easy when I'm on so many meds, but everyone loves a try-er! (Didn't know how to spell that!)
Been out for lunch a few times this week, I forgot how worm out I get! But nice to see some friends.xxx
19th May
Guess who's picked up a what're infection! What the ¥*+^€%#,!!!
Now going onto antibiotics. Did the "stair challenge" today. Which is to get up and down the stairs with or without an aid eg walking stick, crutches etc. I was wheeled over to the stairs walked up the, -not too bad then had to turn round and see the down part. Three people later and the back down. Felt like doing a bow and go "ta da!"
Feeling a heck of a lot more sleepy down here by myself. Got more pain patches and I'm hallucinating and talking to people who aren't here! Keep waking up moving things then I look and I've got nothing in my hands at all. What a weirdo!
17th May
Bit of a long and uneventful day.
Mum came to keep me company as everyone else was busy. Had to take a lot of pain killers which in turn turned me in to a bit of a zombie.....who is drunk!
Not much to report other than I'm still here..no immediate plans to kick me out or move me elsewhere...new ward, carpark, under stairs cupboard!
I'm (trying to) wee independently. Lovely bit of news for you...but have not been very successful!
16th May
Catheter out......yipppppeeee (pee bring the appropriate word!)
Got to learn how to wee again-weird!i don't have to go to Loros, I can go home but we have to make it suitable for my needs. Not easy when you add Flynn into to equation! Who needs looking after first? Who needs changing first? Who needs feeding first?? Etc
Have been upright but not without a frame (no jokes please!)
And can go for a short walk up the ward with mum or a physio. End up walking like Forest Gump!
Go Forest go!!!
15th May
Well, yep, I'm here again! Wonderful hospitality at LRI.
In a shortened down version, I'll tell you what happened.
On Saturday two weeks ago I was feeling a bit bloated and hadn't really eaten properly for a few days. By Sunday morning I thought it was just trapped wind, albeit a lot! By Sunday evening I was kidding no one. Off to Osborne Assessment Unit who pumped me full of morphine etc. I heard someone else being told they were going to Ward 8, the theatre assessment unit, "poor sod, glad I'm not them" I thought. Anywayo after I had followed suit (oh poo!) and landed myself in ward 8, my surgeon appeared. Throwing up the contents of your small bowel is apparently not a good thing.....who knew?!
Emergency surgery followed as without it I would be dead within days/few weeks if I was lucky. Blocked small bowel.
Lifted onto the surgery table and mask on face, they anaesthetised me.
Surgery over, I was wheeled into recovery. Then onto intensive care.
Am now still on the Kinmonth suite. Which is a high dependency unit.
Receiving physio to help me walk again and get some strength back. Don't know when and if I'll be moved elsewhere. My ultimate aim is to get home, even if it's for one more time.
I feel that I haven't finalised things yet, I thought I had loads of time to make the memory quilts etc. it was supposed to be me starting to get poorly then get weaker and weaker but this hasn't been the case. So I am doing my absolute damnedest to get stronger, walk and get home. (In a car, I'm not walking home!) so....
"Oi Mr Grim Reaper, I haven't finished yet! Bugger off!"
Now I am recuperating. I still have a cannula and a catheter in. Trying to get to the bottom of why I am weeing blood now.
4th March
Have had many appointments this week-some I actually turned up to!
The prof has decided that I am going to be the fourth patient to receive a new kind of high intensity radiotherapy to try and shrink the new hard lumps near the stoma site. So guess I'm a guinea pig ....again! Good job I trust him hey?
That will be a one off session next Thursday 12th March. He has also decided (partly cos my fingers and feet are taking a battering (seriously, it's hard to work an iPad through plasters and savalon!)
And also because I've been up chucking! That the chemo and cetuximab needs to be put on hold for 3 weeks.
Have had minor surgery today to remove the growth on my head (no comments please!) so now have blooded gelled back hair and 5 stitches in the front. They have to be removed in 14 days. Also not allowed to wash my hair for two weeks....so not happening! Think I'll have to employ Tash to help with that one!
A sample has been sent off to the lab but it's pretty irrelevant if it's cancerous or not.
........plus, this cartoon would be funny but unfortunately "oops!" Is exactly what my surgeon said! I told him if anything should fall out of my head during the surgery, to just roll it up and pop it back in!
18th February
Back on chemo again after two weeks off due to puking! Lovely!
Been busy with comedians again...as you've probably already seen.
I have decided to continue with all the parts of the chemo regime as something is keeping the diseased areas stable. Don't know which part is working. I just know something is!
There is a new lump which we are keeping an eye on, which is causing me a bit of pain. On new pain meds again, these ones block done of my nerve endings but unfortunately affect brain function (no comments please!) so sleeping a lot more but not in as much pain. So swings and roundabouts!
30th January
Scan today on my chest and abdomen. It was brought forward as I had passed some blood and was in extra pain for some reason.
The short overview is that they have found the reason why I have been in more pain, I don't know what it is yet, but they are hopeful that it's not cancer based and may be something related to my stoma. Have three appointments next Wednesday. 1-to receive chemo on the chemo suite. 2-to see my prof's registrar to see what the scanner results say in a bit more depth. 3-meet with my surgeon, Kirsten Boyle, to discuss god knows what!
I just have to remain strong and not worry between now and then.
25th January 2015!
Well, after seeing the new year in I was awarded yet another hospital stay! This time for uncontrollable puking...lovely! Only had to stay in for a day and a bit. So not too bad. It's meant I've had to have 2 weeks off chemo again as prof wanted to give me time to recover. Going back this Monday to discuss the next plan of action. On the 9th February I have a scan booked and also have to have a little cancerous lump on my head removed. Not looking forward to that...although it's a plastic surgery guy so might ask him if he could run up a few organs I'm missing just to pad me back out a bit!
Back on chemo again after two weeks off due to puking! Lovely!
Been busy with comedians again...as you've probably already seen.
I have decided to continue with all the parts of the chemo regime as something is keeping the diseased areas stable. Don't know which part is working. I just know something is!
There is a new lump which we are keeping an eye on, which is causing me a bit of pain. On new pain meds again, these ones block done of my nerve endings but unfortunately affect brain function (no comments please!) so sleeping a lot more but not in as much pain. So swings and roundabouts!
30th January
Scan today on my chest and abdomen. It was brought forward as I had passed some blood and was in extra pain for some reason.
The short overview is that they have found the reason why I have been in more pain, I don't know what it is yet, but they are hopeful that it's not cancer based and may be something related to my stoma. Have three appointments next Wednesday. 1-to receive chemo on the chemo suite. 2-to see my prof's registrar to see what the scanner results say in a bit more depth. 3-meet with my surgeon, Kirsten Boyle, to discuss god knows what!
I just have to remain strong and not worry between now and then.
25th January 2015!
Well, after seeing the new year in I was awarded yet another hospital stay! This time for uncontrollable puking...lovely! Only had to stay in for a day and a bit. So not too bad. It's meant I've had to have 2 weeks off chemo again as prof wanted to give me time to recover. Going back this Monday to discuss the next plan of action. On the 9th February I have a scan booked and also have to have a little cancerous lump on my head removed. Not looking forward to that...although it's a plastic surgery guy so might ask him if he could run up a few organs I'm missing just to pad me back out a bit!
30th December
Nearly new year. 2015 here we come!
I thought (as did others) that I wouldn't make it through 2013. Now to be heading towards 2015 is mad.
Hospital again tomorrow for treatment. I tend to be changeable...a woman's prerogative! I wake up and deal with each day at a time,
I had a lovely Christmas, three Christmas days! Christmas Eve at Tashs mums, Christmas dinner at my mums then home, Boxing Day at Tashs dads. Loros yesterday. Been to Twycross Zoo today-hardly anyone there. Flynn loved it. Hospital tomorrow then snowdome for some snow fun on Friday.
Decided I wanted to build a snowman with Flynn. So that's what I'm going to do!
Scan results-
Good news, the diseased area in my abdominal cavity has spread, from 2cm in July to 2.8cm now. Which is classified as slow disease progression. The plan is more consistent, regular chemo for as long as I can handle it. There was no evidence of any further tumours in liver, lungs, kidney.
20th December
Hope everyone is nearly ready for Christmas!
I am having my second lot of chemo. Am on a two week course tablet chemo now. They couldn't out another line in my arm, would have had to go through my chest, called a hickman line. There was no guarantee that my body wouldn't reject it. So we had no other option - tablets or no more chemo.
So, I'm trying this!
I'm still having blood thinning injection in my tummy every night. Yuck! Tash doesn't enjoy it either even though I told her that there would probably be a line of people offering to stab me!
I feel permanently mildly crap as opposed to really crap and then start feeling better again.
As usual, I am doing the opposite of what Is expected, and puking when off the tablets. But hoping that was from a head cold!
Who knows?!
I have got to go in every Wednesday for IV stuff which is a pain and I will be going in on Christmas Eve. So, Santa Lizzy will be doing a 'not so secret Santa' and delivering little pressies to all the team who are working over Christmas. Spreading a little festive spirit!
Plan for now- stay out of hospital for the Christmas period!
11th January 2015
Happy New Year to you all!
Had the next lot of chemo last Wednesday....unfortunately had one of my funny turns whilst it was going in so spent most of Wednesday night sobbing and suffering. But pleased to report that it all seemed to have settled down a bit by Thursday.
Took Flynn swimming today for his lesson. His little face lights up and he gets so into it! Actually swam on top of the water today for the first time. He spent most of it dunking and coming back up, but a good start.
3rd December
Next lot of cetuximab in! Check
10 chemo tablets a day shoved down my throat! Check
Smile on the face.......check!
Doing ok. Had a nice surprise of being let out of the chemo suite earlier than expected!
Ready to put the Christmas tree up soon. A new one after putting up with a sad looking specimen no more!
I love christmas lights!
16th November
Nearly new year. 2015 here we come!
I thought (as did others) that I wouldn't make it through 2013. Now to be heading towards 2015 is mad.
Hospital again tomorrow for treatment. I tend to be changeable...a woman's prerogative! I wake up and deal with each day at a time,
I had a lovely Christmas, three Christmas days! Christmas Eve at Tashs mums, Christmas dinner at my mums then home, Boxing Day at Tashs dads. Loros yesterday. Been to Twycross Zoo today-hardly anyone there. Flynn loved it. Hospital tomorrow then snowdome for some snow fun on Friday.
Decided I wanted to build a snowman with Flynn. So that's what I'm going to do!
Scan results-
Good news, the diseased area in my abdominal cavity has spread, from 2cm in July to 2.8cm now. Which is classified as slow disease progression. The plan is more consistent, regular chemo for as long as I can handle it. There was no evidence of any further tumours in liver, lungs, kidney.
20th December
Hope everyone is nearly ready for Christmas!
I am having my second lot of chemo. Am on a two week course tablet chemo now. They couldn't out another line in my arm, would have had to go through my chest, called a hickman line. There was no guarantee that my body wouldn't reject it. So we had no other option - tablets or no more chemo.
So, I'm trying this!
I'm still having blood thinning injection in my tummy every night. Yuck! Tash doesn't enjoy it either even though I told her that there would probably be a line of people offering to stab me!
I feel permanently mildly crap as opposed to really crap and then start feeling better again.
As usual, I am doing the opposite of what Is expected, and puking when off the tablets. But hoping that was from a head cold!
Who knows?!
I have got to go in every Wednesday for IV stuff which is a pain and I will be going in on Christmas Eve. So, Santa Lizzy will be doing a 'not so secret Santa' and delivering little pressies to all the team who are working over Christmas. Spreading a little festive spirit!
Plan for now- stay out of hospital for the Christmas period!
11th January 2015
Happy New Year to you all!
Had the next lot of chemo last Wednesday....unfortunately had one of my funny turns whilst it was going in so spent most of Wednesday night sobbing and suffering. But pleased to report that it all seemed to have settled down a bit by Thursday.
Took Flynn swimming today for his lesson. His little face lights up and he gets so into it! Actually swam on top of the water today for the first time. He spent most of it dunking and coming back up, but a good start.
3rd December
Next lot of cetuximab in! Check
10 chemo tablets a day shoved down my throat! Check
Smile on the face.......check!
Doing ok. Had a nice surprise of being let out of the chemo suite earlier than expected!
Ready to put the Christmas tree up soon. A new one after putting up with a sad looking specimen no more!
I love christmas lights!
16th November
Well I m still in hospital with am infection that won't go away! So over the last 48 hours I have been resting.
Resting doing the following things:
Playing trains with Flynn whilst out on day release for good behaviour, been for lunch with Tash and Flynn, made Flynn a Santa sack, saved a woman from choking to death, found some wood for mini mans house roof, (stolen from dad), went live on a hospital radio station ams won some After Eights!
Just what the doctor ordered!
I've moved! Got wheeled to ward 40 this morning!m my arm stuck up in the air to stop the spread of infection. May have to have a Hickman line into my chest.
'Proper bob' as Suzi would say!
13th November
Was admitted to the LRI on 11th Nov as I was fevering, my arm hurt and I felt really shitty!
I had to come into the oncology assessment unit, and I'm still here!
I have an infection in my PICC line. They tried to save it but said it was making me too poorly to leave it in, therefore had to remove it. May mean I have the have a line put in through my chest called a Hickman Line.....which I don't want!
There was no way I was missing Monday night and Sarah Millican gig.
We were trying find seats downstairs when Tash overheard one of the Stewards talking about reserved seating for Lizzy, apparently Sarah had reserved seats as she wanted me to sit front row, dead centre. Bless her! The new material gig was hilarious. Lou Conran first, then Sarah. Then Andy White followed byGary Delany and Sarah again to finish it off. When I went to the loo in the break I found Lou coming up the staircase and said Sarah wanted me and my group to go backstage to her, which we did. Was nice to share stuff with family and friends. It was a surprise that Gary was there. He is a very funny comedian, on live at the Apollo etc. and obviously, is Sarah's husband.
I couldn't believe it at the end when she. Did a shout out to Lizzy and her friends/family. But when she said she'd match the collection pound for pound, I was shocked. I mean, how nice is that?!
So with Sarah's money too, it'll come to over £700!
We are getting closer to £3000 now!
I've been building Flynn a house/den out of unwanted pallets. Looks good. It has 4 sides now and is ready for the roof if I can get out of here!
My life is mad. I have such high highs and then get smacked back down to reality again, really quickly.
3rd October
Usual crappy side effects kicking in...nausea, tingly tongue, sore mouth, tiredness, flushing through at 100mph! Lovely!
Doing ok though. Random Acts going well... Got over £1700 now! Mental!
27th October
Been to hospital and Loros today. Oncology have decided to go ahead with 50% chemo this Wednesday. So i had to have a new PICC line in. Unfortunately they had to go into my right arm. Guess I'll just have to become ambidextrous!
I have new pain meds and have to increase my morphene. Lovely!
15th October
Well, how on earth do I write an update?!
Obviously, I've been very busy what with Sarah Millican, Dawn French, the Leicester Mercury, Harborough FM.....tomorrow Gem 106 and Leicester City Football Club!
Oh, and the boring stuff- I have lots of little blood clots in my left arm, had to have my PICC line removed and no chemo. Now have to have daily Deltaparin injections to stop DVT!
Will have to put some kind of line back in and see where to after a phone call tomorrow!
6th October
Played pool with Vicky yesterday after watching Flynn's swimming lesson....the trainer said she would sit on the side, mummy in the water (and I quote) throw your little one in and hopefully you will catch baby!
I'm sorry what?! Are you mad?!
In usual Flynn style, he went first and giggled so much as he was dropped into the pool....and yes, mummy did catch him! He loved it so much he did it again!
Today I woke up in time (just) to see Flynn's music lesson, where today he had to wear red. He pottered around, singing in his sweet little singing voice and then smacked the tiddle out of a tambourine-we'll you can't be dainty all the time!and just for those who remember me as a two year old...we sang chick chick chick chick chicken!
4th October
The pump came off this morning...so all that crappy stuff is fully inside me...let the fight begin! Glad the tablets that I'm taking to counteract the yucky mood swings from the steroids are working.
Been understandably tired but with a fair bit of sleep I'll be up and fighting again soon!
Really enjoying hearing Flynn's 'wonderful' singing voice!
Thankyou to everyone for your lovely text messages related to the school's collection. It's still not quite sunk in yet. Still don't feel that I deserve all the attention but it is very humbling.
Hope everyone is having a lovely weekend!
30th September
A day in the garden with mum making it look all lovely and hoping I've not just provided lots of free slug food for the slimy little buggers!
Off to chemo tomorrow with Katie. 8 hours of fun...not!
Just hoping I can stay out of hospital this time!
29th September
Today I have been to Loros and LRI. They have given me even more painkillers and some cream for my incredibly sore and dry face ( side effect )
They have agreed to give me 50% of the dose again to see if I end up in hospital again....talk about Russian roulette!
Then off to Loros for back massage to try and help me relax and deal with the pain. Was nice. Have to sit straddled over a specialist chair because of my scars etc.
session with my counsellor then home. So I will be going in on Wednesday for my next 8 hour session and 48 hour pump....fun fun fun!
25th September
Lazy morning, followed by a trip to Glebe after finding £40 of gift vouchers from Christmas 2009! Don't you just love it! Just watched this movie ;
We'll worth watching. Can download it from amazon prime. Can be rented for a couple of quid! It's about an Autistic boys journey and linked to September 11th. Lovely film.
24th September
No chemo today. Deferred until next Wednesday if my bloods are ok. Had a lovely day with Flynn and Vicky instead!
23rd September
Hi honey I'm home!.......finally! I mean of course it takes 7 hours to find my medication that was locked by the door of my own bed!
Dad decided that my 'bay mates' seemed sad to see me go. Either way, I wasn't staying! Sleeping on my own bed (sofa) tonight without three unknown people snoring so loud they nearly measured on the Richter scale!
22nd September
Still sitting in the LRI as my blood count gas decided to go down and mu immune system has done a runner!
So I'm staying in yet again!
Got to talk to the doctor at 8am....which will be quite difficult as trying to get any sene out of me at that time in the morning is nigh on impossible....mainly due to incredibly low blood pressure and heavy eyelid syndrome (don't laugh, it's a very serious illness!)
Got to see if I am at more risk of infection sitting in here than I am sitting at home!
I don't generally get random strangers with infections sitting next to me watching the TV at home!
We will then have to see what the plan is.
-----------------------------
21st September
They said I could come home this morning!
.....so my body decided to drop my white blood count and immune system just so I could stay a bit longer. Lucky me!
-----------------------------
Yup, I'm still in hospital.
Now having Phosphates pumped through me for 12 hours....whatever they may be!,
My good deed for the day was teaching a nurse and a patient how to make loom bands!
Am in again overnight, hopefully out tomorrow and then have chemo again on Wednesday!
Oh what an exciting life I lead!
---------------------
13th September
The pump is off! Finally! They turned up at 3ish today. Feeling not as bad as last time but only had 50% of it so had my fingers crossed!
Taking new tablets to counteract the mood swings from the steroids, that stop the nausea! So, yes, I am taking tablets to counteract the side effects of the other tablets that stopping side effects.....confused, you will be!
Went to the local pub and had a sandwich with Sharon....we couldn't decided between the smoked cheddar and caramelised red onion or the prawn chilli and mint yoghurt... So we shared. I know! Mint yoghurt in a sandwich?! That's what I thought, so went for it anyway. Surprisingly nice!
Tash and Flynn had some rest bite and caught up with a friend which was nice.
Now have decided that am not sobbing=good, but short tempered= bad. So chilling on the piano tonight!
11th September
Woke up today to answer the phone and speak to a solicitor about Will making. I mean what better start to the day could you wish for?!
It was at 11.46am...so every cloud and that!
Got up, had a shower...which took me about ten times longer that the average person due to fact that I have a bag stuck to the right hand side of what's left of my belly button that can't get wet, a picc line on my left arm that is covered with a tubi-grip that can't get wet. And I have a chemo pump attached around my neck in a little bag....guess what, yup it cant get wet! And I had to wash my hair.
So to run down my shower routine:
1) start shower running and kneel with head over the bath. Wash hair using only my right hand making sure the pump is on the outside of the bath.
2) lay shower head down in the bath then dry hair.
3) put hair in a towel. Then lean over the bath and wash the top half of my body again, just using my right hand. (cleaning the arm put without water running down your arm is a particularly difficult one)
4) dry to half.
5) swing pump around onto my back. Peg bag up to make it smaller. Stand in the shower and wash the bottom half of my body....yup you guessed it, just using my right hand.
5) turn shower off and dry.
7) put clothes on but having to make sure the pump is posted through the right arm of my bra and top. Run the cable up my arm, out of the neck and in its bag.
8) go back to bed as your bleeding knackered!
Mum came round. We pottered in the garden and picked blackberries.
I have the usual side effects- nausea, tired, restless, confused etc. although cant complain as I know it gets worse before I can start coming out of the other side. Hoping to avoid the hospital sty, mouth ulcers, split lips, low blood pressure, fever and no immune system! Fingers crossed!!
10th September
Sitting in my chemo chair again! 50% of the dose. Not feeling 50% better though!
Vicky has been with me all day bless her!
We've watched two of my favourite comic ladies-Sarah Millican and Sandra Bullock...Thankyou ladies!
It's 6.25pm and I've been in the chair since 1pm. As usual everyone around me has seemed to come and go.
Fell asleep twice. Got a feeling it's just going to be me, Vicky, the nurse and the cleaner again!
Hope it won't be too much longer...for Vicky's sake more than mine!
9th September
Today was a lovely day......apparently. Unfortunate that I missed most of it!
Long story cut short...awake at 4.30am, spinning head and chucking my guts up! Mum round to look after mini man while I woke up at 3pm ready for breakfast. Fell asleep, woke up at 5.30ish for a mid morning snack and just woke up at 9pm ready for lunch!! Problem is that my evening meal is scheduled for about 2am....no wonder I'm pretty much nocturnal!
7th and 8th September
Sunday was spent having a good clear out in my living room.....then sleeping!
I went to the hospital today. Had my appointment, decisions were made to go for chemo again this Wednesday but to half the dose....something about not killing me (nothing too important!) so we'll go for it snd see what happens!
Went to visit Loros. Quite a nice place really.....puts the Gastro ward to shame I can tell you!
5th and 6th September
Watched lots of planes fly over Littlethorpe on their way to the victory show. Flynn made lots of oohs and arhs in the right places!
If you've seen Facebook then I'm sure you have seen the picture Tash posted of me wearing my 'I'm not getting a cold' mask!
A day of tidying and finding the living room!
3rd and 4th September
A good two days really.
I met Tracey from Coping with Cancer on Wednesday. Katie very kindly entertained mini man in the garden while I waffled for two and a half hours (shocked? I know! Me, being able to waffle for over two hours!)
Mum had Flynn today at her house, whilst a pottered! Was quite nice to have some time on my own.....as much as I love little man, im not loving his snotty little nose!
1st and 2nd September
What happened to August?!
Getting a bit stronger but still like an 80 year old woman!
Think I may audition for the role of sleepy dormouse in Tim Burtons Alice in Wonderland if he decides to do another remake!
31st August
My white blood count trebled as I left the hospital (hospitals are obviously bad for you!)
They went from 0.3 to 1.09. Means nothing to us but Vicky will know all about it as she often compares me to apes! (no comment please!)
My potassium level is now in the safe zone of 3.9.
So you'd think I'd be up and about, full of beans, fighting fit....nope!
So tired and lethargic its unreal! Still dizzy and limbs feel like I have 7 Mongolian peasants hanging from each one!
So far I have mastered 3 of the 7 dwarves: sleepy, doc and dopey!
Here's to the other 4.
30th August
Watch out East Carlton Park! Me, Tash and Flynn went for some lunch and a play in the sand! Was lots of fun...so much so that me and Flynn had to have a nap!
29th August
A very quick round up today
Woke up, waited for the district nurse. Changed dressing on my picc line. Fell asleep.
Woke up, answered a few texts, fell asleep.
Woke up, saw it was raining, brought the washing in. Fell asleep!
Woke up, now writing this. Haven't decided what to do next. May be a rebel and...fall asleep!
28th August
First day at home. Slept until 12.15pm...good job I'm not at work otherwise I'd have slept through the first two lessons. I haven't got a problem with that but for some reason I think my boss would!
27th August
I'm home! Still have pretty much no white blood cell count and a pathetic excuse for an immune system..... But like the Christmas Coca-cola advert, I'm still going!
26th August
Birthday present of 0.4 white blood count!
I have bunting round my bed and eating an orange lolly!
I'm home! Still have pretty much no white blood cell count and a pathetic excuse for an immune system..... But like the Christmas Coca-cola advert, I'm still going!
26th August
Birthday present of 0.4 white blood count!
I have bunting round my bed and eating an orange lolly!